I had coffee with AH from my ISAIAH agitation table today. Good to get to know her better. She’s doing such important work! I am really blessed to have these people in my life who will not only share their stories with me, but listen to my story as well.
Then home for a simple lunch [...]
I feel great. A part of me is amazed at this. Given all the chaos happening around me I have somehow been able to find a protective bubble to walk in. I’m grateful and acknoweldge that it’s not of my own doing. I attribute a great deal of it to prayer; mine and others who [...]
Ps 25: 1-3a, 16-18, 20
To you, O Lord, I lift up my soul. O my God, in you I trust; do not let [SL] be put to shame; do not let [SL's] enemies exult over [him]. Do not let those who wait for you be put to shame; Turn to [SL] and be gracious to [...]
So now we know that:
SL has ALL type B.
His leukemia blood cell counts are very low (which is very good and hopeful)
On Monday, he had a good day, but when he got up to go to the bathroom there was hair on his pillow.
His white blood cell count has dropped with the chemo, which is [...]
Just got off the phone with a mutual friend of SL’s family. We feel so helpless. We want to be able to help somehow, but there’s nothing that we can do.
She at least has money and can provide tools. A portable DVD player and the first two seasons of “The Simpsons.” A laptop, so his [...]
This site helped to describe the different types of childhood leukemia and the process of treatment.
I still don’t know if they have determined what kind of leukemia SL has.
A to Z Encyclopedia Topic: Acute Myelogenous Leukemia
— — — A year ago (or longer) on This Journey…
emotionally available but… 2007
No kidding now 2007
I just want to [...]
It has been a weird three months (3 months!!!) since I last posted. More about the outcome of that post later.
We found out yesterday that DS2’s best friend since birth, has leukemia. He is entering the hospital today to have a spinal tap, a shunt put into his chest and chemo therapy started. His family [...]
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